NORD Summit Reveals 2025 Rare Disease Priorities

Each year, NORD's Breakthrough Summit brings together more than 900 attendees to share the latest developments in the rare disease community.

This year, the NORD Summit's theme, "Equitable Access to Innovation," was woven into the sessions. Rising out of this overarching theme were three major topics consistently mentioned as both priorities and persistent gaps in the rare disease care environment. The topics were: Ensuring
patient centeredness in care planning, delivering access to innovative therapies, and narrowing the focus on innovation. Avalere experts Shelby Harrington, RN, Mariia Salova, Nicole Betor, and Jasmine Nicole Namata shared their perspectives on the Summit with MedAd News.

To read about developments at the NORD Breakthrough Summit, visit MedAd News.

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Avalere applies our expertise in FDA regulatory strategy and evidence generation planning, access strategies for rare disease treatments, and strategizing impacts of IRA implementation to help healthcare stakeholders meet their strategic business objectives for approval and lifecycle management. To learn more about how Avalere can help you with clinical development planning, value, and access strategies for rare and ultra-rare disease assets, connect with us.