Congressman Danny K. Davis Introduces Bipartisan Legislation Designating September 2024 as 'National Sickle Cell Disease Awareness Month

Washington, D.C. - Congressman Danny K. Davis (D-IL), along with a bipartisan coalition of original cosponsors, today introduced a resolution recognizing September 2024 as "National Sickle Cell Disease Awareness Month." The resolution highlights the importance of raising awareness about Sickle Cell Disease (SCD), advancing research, improving access to treatments, and providing support for the millions of Americans affected by this life-altering condition.

Representatives Michael C. Burgess, Barbara Lee, Terri Sewell, Rashida Tlaib, Robin Kelly, Eleanor Holmes Norton, Henry Johnson Jr., Nanette Barragán, Nikema Williams, Emanuel Cleaver, Stacey Plaskett, Cori Bush, Yvette Clarke, and Sanford Bishop are the original cosponsors of the bipartisan legislation.

"As we mark the 51st anniversary of the National Sickle Cell Anemia Control Act, it's essential to renew our commitment to those affected by Sickle Cell Disease," said Congressman Davis. "This resolution ensures that September 2024 will be dedicated to spreading awareness, promoting research, and supporting those individuals and families who face the daily challenges posed by this disease. These 'Sickle Cell Warriors' deserve our full support as we move toward improved care and eventual cures."

Sickle Cell Disease: A Public Health Priority

Sickle Cell Disease is an inherited blood disorder that affects the shape and function of red blood cells, reducing their ability to carry oxygen throughout the body. This condition disproportionately impacts African Americans, with approximately 1 in every 365 African American children born with SCD and 1 in 13 African Americans carrying the Sickle Cell Trait (SCT). Many individuals with SCT may not be aware of their status, increasing the importance of education, screenings, and preventative care.

"With medical advances on the horizon, including potential gene therapies, now is the time to amplify awareness and support the development of treatments that could significantly improve the quality of life for individuals with Sickle Cell Disease," Congressman Davis emphasized.

A Legacy of Advocacy and Care

Since its discovery in 1910, Sickle Cell Disease has posed significant health challenges, primarily to people of African descent. The passage of the National Sickle Cell Anemia Control Act in 1972 marked the beginning of federally funded research, awareness, counseling, and screening programs aimed at addressing the disease. This resolution continues that legacy by focusing attention on the importance of comprehensive care, research, and the need for federal programs to support SCD patients.

The average lifespan of an adult living with Sickle Cell Disease is 20 to 30 years shorter than that of the general population. Congressman Davis's resolution urges Congress to recommit to supporting the medical advances needed to extend and improve the lives of people living with SCD and to ensure equitable access to care for all affected individuals.

Bipartisan and Bicameral Support

The introduction of this resolution is the product of bipartisan and bicameral cooperation. "I am grateful for the broad support of my colleagues in both parties who recognize the urgency of this issue," said Congressman Davis. "We invite additional members to join us in sponsoring this resolution to demonstrate Congress's unified commitment to fighting this disease."

How to Cosponsor the Resolution

Members of Congress who wish to join as cosponsors of H.Res.1495 are encouraged to contact Caleb Gilchrist in Congressman Davis's office ([email protected]) or Jacquelyn Incerto in Congressman Burgess's office ([email protected]).

About Congressman Danny K. Davis

Congressman Danny K. Davis is the Ranking Member of the Ways and Means Subcommittee on Worker and Family Support. He has been a leading advocate for healthcare equity, child welfare, criminal justice reform, and economic development. He has represented Illinois's 7th Congressional District since 1997. He remains committed to addressing public health challenges, particularly those affecting communities of color.

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