Cherokee Nation hosts first Rare Disease Summit in Tahlequah

TAHLEQUAH, Okla. - The Cherokee Nation held its first Rare Disease Summit on Thursday, Nov. 21, at the Cherokee Nation Health Services Campus, bringing together healthcare professionals, medical specialists, and community members to address the unique challenges facing tribal citizens with rare medical conditions.

The summit featured expert speakers across multiple medical specialties, including neurology, rheumatology, optometry, infectious disease, and pediatrics. Attendees participated in an interactive question-and-answer panel and explored a resource fair designed to provide comprehensive information and support.

"This summit represents our proactive approach to addressing rare diseases within our tribal community," said Cherokee Nation Principal Chief Chuck Hoskin Jr. "We're not just raising awareness; we're building a comprehensive support system that empowers our citizens with knowledge and resources."

First Lady January Hoskin highlighted the summit's emotional importance.

The Cherokee Nation held its first Rare Disease Summit on Thursday, Nov. 21, at the Cherokee Nation Health Services Campus, bringing together healthcare professionals, medical specialists, and community members to address the unique challenges facing tribal citizens with rare medical conditions.

"Every rare disease story matters. Today, we've created a space where our citizens can feel heard, understood, and supported. Our commitment goes beyond medical treatment - it's about dignity, community, and hope," First Lady Hoskin said.

With rare diseases affecting an estimated 1 in 10 Americans and over 7,000 known conditions, the Cherokee Nation's initiative represents a significant step toward raising awareness and addressing these complex medical challenges.

"Rare diseases often exist in the shadows of the medical community," said Cherokee Nation Health Services Chief Medical Officer Dr. Beth Harp. "This summit is our opportunity to shine a light on these complex conditions, bringing together expertise, compassion, and a shared commitment to improving health outcomes."

Principal Chief Chuck Hoskin Jr. helped welcome participants before the summit sessions began.

According to the National Institutes of Health, any disease affecting fewer than 200,000 people in the United States is considered rare, and more than 90% lack FDA-approved treatments. Cherokee Nation's healthcare system, the largest and most effective in Indian Country, is committed to finding solutions and increasing resources for people with these conditions by raising awareness, advocating for policy change, and building a growing support network.

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